The Nelson Mandela International Day recognizing the contributions of the great son of Africa to democracy, racial justice, reconciliation, and his dedication to the services of humanity.

At the Adegoke Street, Surulere, Lagos State Resource office of the foundation, some staff of the Information Centre of the United Nations (UN) Nigeria visited to join in this year’s campaign and call by the Nelson Mandela Foundation for individuals around the world to donate 67 minutes of their time to changing the world for the better.

According to the team leader, Mrs. Araba Olajumoke, the objective of this year’s celebration of the Mandela Day was to affect humanity.

“The overarching objective is to inspire individuals to take action and in doing so, empower entire communities and build a global movement for good,” she said.
The campaign slogan for this year’s celebration is; Take Action, Inspire Change: Make Every Day a Mandela Day.

While receiving the UN delegation to the foundation, the National President, Mrs. Rose Mordi , said that the children and staff of the foundation were thrilled when they were informed that they would have visitors from the UN coming to celebrate the birthday of Nelson Mandela with them.

“Every African and every right thinking person knows the sacrifice that Madiba Nelson Mandela made for his country and for reconciliation and we are happy to be part of this great celebration. What is happening here today represents the kind of person we are celebrating is; a man that takes every human being to be equally loves and respected. We wish him the best of health as he celebrates his 93rd birthday. We are the Down Syndrome Foundation Nigeria will keep praying for him,” she said.

They UN group were led through a tour of the facility by the foundation’s administrator, Mrs. Patricia Peters after which the slide projector presentation about the life, struggle and achievement of Nelson Mandela was shown.
Also, a biographical movie entitled Invictus about the life of Nelson Mandela was shown to the children.

Araba later led the group to do some cleaning of the facility and also the hostel as well as cooked for the children who were evidently happy to be included in the celebration. All the children and members of staff later sang a happy birthday song to Nelson Mandela and wished him many more years to affect humanity the way he has been doing.

By Ahaoma kanu

The Down Syndrome Foundation Nigeria (DSFN), the charity that takes care of people with Down Syndrome in Nigeria and the west coast joins all other Down Syndrome organizations all over the world in celebration of the World Down Syndrome Day (WDSD) which is officially marked on March 21st of every year.

The World Down Syndrome Day-WDSD is a global event supported by all Down syndrome groups worldwide and we at DSFN use this period to focus our efforts in Advocacy, Awareness and interactive and educative partnerships to overcome the prejudices of people living with Down syndrome.

The foundation had series of activities to commemorate the event which included an inter-house sports, a comedy show entitled Comedy Infusion which was celebrated yesterday at The Incubator, Ligali Ayorinde Street, Victoria Island, opposite RCCG Church (City of David) Lagos. The event witnessed top comedians like Emeka Smeth, Teju Babyface, Klint Da Drunk, Funky Mallam, AY, Seyi Law, Elenu and Shakara. Music entertainment came from Ice Prince, Buzopat, W4, Ray 9 and Ara. The event was packaged by Meljenstin PR & Events, E-Smith and Down Syndrome Foundation Nigeria. An Open House event which will feature several activities will cap the celebration.

Also, the foundation is one of the recipients of the 2011 World Down Syndrome Day Awards courtesy of the Down Syndrome International (DSi) based in the United Kingdom but comprising a membership of individuals and organisations from all over the World, committed to ensuring quality of life and human rights for all people with Down syndrome .

The announcement was made today and the foundation won in the award in the Outstanding Professional Categories for organisations that have affected people with Down Syndrome in the world.

Speaking delightedly about the award, the National President of the foundation, Mrs. Rose Mordi said the foundation was grateful and really encouraged by the award.

“Honestly, I must say that we are surprised by this honour and we dedicate the award to God Almighty for given us the strength to be doing what we are doing and also to our members, volunteers and well wishers,” she said.

The foundation was the only African country to receive the award this year which is the second edition of the awards.

According to the Mr. Andrew Boys, Director of DSI, a formal presentation formal presentation of World Down Syndrome Day Awards for the years 2010-2012 will take place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.

Below is the Press Release published by DSi and can be viewed at the link http://www.ds-int.org/news/1666

PRESS RELEASE

For immediate release on Monday 21 March 2011

DOWN SYNDROME INTERNATIONAL ANNOUNCES RECIPIENTS OF 2011 WORLD DOWN SYNDROME DAY AWARDS

On Monday 21 March 2011, World Down Syndrome Day, Down Syndrome International (DSi) is delighted to announce the recipients of the 2011 World Down Syndrome Day Awards.

2011 is the second year of the World Down Syndrome Day Awards, presented to individuals or organisations whose voluntary, professional or scientific activities have strengthened and enriched the lives of people with Down syndrome, or contributed to scientific advancement related to Down syndrome.

This year’s recipients are as follows:

Voluntary and Professional Awards

4 individuals with Down syndrome receive awards for outstanding self-advocacy:

Ty Belnap (Australia) – Record breaking swimmer, surf lifeguard and stage and movie actor.

Mia Farah (Lebanon) – Self-advocate and international disability rights campaigner.

Malgorzata Jablonska (Poland) – Stage and movie actress, performing in many European countries.

Sujeet Desai (USA) – Accomplished musician and self-advocate with worldwide reputation.

3 individuals receive awards for outstanding professional activities:

Dr Branka Butorac (Croatia) – Headmaster of Down Syndrom Centar Pula, Croatia.

Driton Bajraktari (Kosovo) – Co-Founder and Executive Director of Down Syndrome Kosova, Kosovo.

Pauline L`vovna Zhiyanova (Russia) – Special Education Teacher, Downside Up, Russia.

4 organisations receive awards for outstanding professional activities:

Ikatan Sindroma Down Indonesia (ISDI) (Indonesia) – Down syndrome support and advocacy group.

Yaldei Tismonet Down (YATED) (Israel) – Down syndrome parent support organisation.

Down Syndrome Foundation Nigeria (Nigeria) – Centre for children and adults with Down syndrome.

Robert Owen Communities (UK) – Charity supporting over 350 adults with learning disabilities.

2 individuals receive awards for outstanding volunteer activities:

Agnieszka and Zofia Aleksandra Tucholska (Poland) – Young sisters with volunteering experience assisting people with Down syndrome and other learning disabilities.

1 individual receives an award for an outstanding contribution to raising awareness of Down syndrome:

Casper Lja (Canada) – 23 year old man who cycled 7,444 kilometres across Canada to raise awareness and money for Down syndrome advocacy.

Scientific Awards

1 individual receives an award for outstanding contribution as a medical professional in the field of Down syndrome:

Dr S Suresh (India) – Co-Founder and Chief Medical Director, MediScan Systems, Chennai, India.

President’s Special Recognition Award

2 individuals receive special awards for lifetime achievement in Down syndrome advocacy:

Penny Robertson OAM (Australia) – Pioneer of Down syndrome advocacy in Australia, Founder of Australian International School, Indonesia and Co-Founder of Down Syndrome International.

Dr Balbir Singh PBM (Singapore) – Founding Chairman of Down Syndrome Association Singapore, pioneer of World Down Syndrome Day programme and Social Service and Disability sector advocate.

All recipients are invited to a formal presentation of World Down Syndrome Day Awards for the years 2010-2012 taking place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.

-END-

For further information on the recipients of the 2011 World Down Syndrome Day Awards or to learn more about World Down Syndrome Day (WDSD), please visit the DSi website www.ds-int.org or the WDSD website www.worlddownsyndromeday.org. For further information on the WDSC please visit the website www.wdsc2012.org.za.

–
AHAOMA KANU
MEDIA AND PUBLICITY COORDINATOR
DOWN SYNDROME FOUNDATION NIGERIA
43, ADEGOKE STREET
OFF MASHA ROAD, SURULERE
LAGOS STATE
NIGERIA
Email: a.kanu@dsanigeria.org
Website: www.dsanigeria.org
Tel:: +234-80-3748-7286

The Down Syndrome International (DSI) adopted March 21^st to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21^st chromosome and is used synonymously with Down syndrome. The inaugural WDSD was held on 21 March 2006 in Singapore.

Our activities for this year’s WDSD events include an Inter House Sports Competition, Comedy Infusion and an Open House on March 21, 2011.

The INTER HOUSE SPORTS competition is slated for Wednesday, March 9, 2011 at the Sam Shonibare Community Centre, Off Ajao Road, Surulere, Lagos under the distinguished Chairmanship of Mr. Tonye Cole, Managing Director, Sahara Oil and Gas Limited. The Special Guest is the Lagos State Commissioner for Women and Poverty Alleviation, Mrs. Joke Orelope-Adefulire. The Father of the Day is Mr. William Pope, Principal, Grange School, while Mrs. Stella Nwankalor is the Mother of the day.  The event starts at noon.

The COMEDY INFUSION comes up on Sunday, March 20^th, 2011 at The Incubator, Ligali Ayorinde Street, Victoria Island, opposite RCCG Church (City of David) Lagos.

Comedian Seyi Law, Mrs Patrick Chibuzor CEO Meljenstin PR& Events,Mrs. Rose Mordi, National President DSFN, Comedian Funky Mallam &Emeka Smith.JPG

Participating comedians include Basketmouth, Julius Agwu, Gbenga Adeyinka d 1^st, Funky Mallam, AY, Gordons, Klint Da Drunk and Teju Babyface. Others are Seyi Law, Emeka Smith, CD, John, Elenu, Shakara. Music entertainment coming from Ice Prince, Buzopat, W4, Ray 9, Obiwon, Whiz Kid, MI, Liza and Jay One.

Press Conference on the 8 March 2011 at DSFN HQ

Guest appearance by Ali Baba and Master of Ceremony is Desmond Elliot.

Her Excellency, Mrs. Sarah Sosan, Deputy-Governor of Lagos State is the Special Guest of Honour and Mother of the Day is First Lady, Lagos State, Mrs. Abimbola Fashola.

The event starts at 5 pm. Tickets –Regular- N1, 500, VIP- N5,000 and V-VIP- N10,000- are available in all Tastee Fried Chicken outlets  Festac, V/I, Opebi, Ikoyi, Agege, Surulere, Marina, Omole, Ikorodu.

There are tables of 10 – N200, 000 and a table of 5 – N100, 000.

This event is been packaged by Meljenstin PR & Events, E-Smith and Down Syndrome Foundation Nigeria.

The WDSD- OPEN HOUSE is on Monday, March 21^st, 2011 at the DSFN Resource Centre at 43, Adegoke Street Surulere. Time is 11 am prompt. The open house will feature several activities.

Let’s Show Them LOVE!

SPEAKERS: DR. REUBEN ABATI
CHAIRMAN, EDITORIAL BOARD
THE GUARDIAN NEWSPAPERS

DR. DAVID MULLIGAN
ENTERPRISE DEVELOPMENT ADVISER
SMEDAN ABUJA

PROF. JOANNE UMOLU
EXECUTIVE DIRECTOR
OPEN DOORS FOR SPECIAL LEARNERS
JOS NIGERIA

PENNY GREEN
DIRECTOR
DOWN’S HEART GROUP U.K

DATE: 5TH OCTOBER 2010

TIME: 10 AM PROMPT

ADMISSION: FREE

The Awareness Week is part of a global event supported by all Down syndrome groups worldwide. We at Down Syndrome Foundation Nigeria (DSFN), use this period to focus our efforts in Advocacy, Awareness and Fund raising.

The theme for this year’s programme is “Just one chromosome…Give me a chance.”

The key events of the week are…

Our aim is to raise as much funds as possible towards the target of N25m (Twenty-five million Naira), which would commence the development of a properly equipped educational establishment resource centre, provide transport and working capital. We also need to urgently raise N10m (Ten million Naira) for the next set of 8 remaining children and babies who require life saving heart and eye surgery in India.

Your specific support/sponsorship is required in the following areas…

* Sponsoring/Branding Tee Shirts and Fez caps for the charity walk on Saturday, October 2, 2010
* Branding the Seminar materials and venue scheduled for Tuesday, October 5, 2010
* Paying for several tables for the fund raising dinner and awards evening on Thursday, October 7, 2010 (a table of 10 costs N140,000 –individual tickets costs N15,000 each)
* Further sponsorship details are hereby attached

As this is the first year as a Foundation, partnering with an eminent corporate organization like yours, we are confident that this year’s edition will be the most successful ever.

Mrs Rose Mordi

National President.

Children at the launching of the Down Syndrome Foundation of Nigeria (DSFN)

It was double celebration for people with Down Syndrome on Children’s Day Celebration last week as they marked the launching of the Down Syndrome Foundation Nigeria (DSFN)and also had their new resource centre commissioned.

During the event which held at the Foundations resource centre located at Adegoke Street in Surulere, Lagos State, the First Lady of Lagos State, Her Excellency, Mrs. Abimbola Fashola   extolled the dedication and determination of initiators of the Down Syndrome Foundation Nigeria, notwithstanding the enormous difficulties caregivers to children afflicted with such challenges pose. Speaking at the event,  Mrs.Fashola, who was represented by her Senior  Special Assistant, Mr.Biodun Ogunyade, said she will be willing to assist the Foundation, to ensure the Children are properly catered for.

“ She asked me to say thank you, thank you, for a job well done,” he said and also  on Corporate Nigeria, and other well meaning Persons to show concern and support for the Children and the Foundation.

He went on to announce that   Ministry has concluded plans start a TV show, a Social Welfare Hour, to showcase the works of charities that help special people and promised that children with Down syndrome  and the activities of the Foundation will be given priority. He urged the larger society to show love and care to kids, who are so challenged, rather than stigmatizing and discriminating against them.

President and Founder of the Down Syndrome Foundation, Mrs. Rose Mordi has stressed the need for Parents with  DS condition children  not to regard it as a curse as the children could be helped to live a fruitful and productive life if given the necessary assistance. Mordi made the call as the members of the Board of Trustees of the foundation were inducted.    Speaking to journalists, Mordi urged parents with children with the Down syndrome not to stigmatize or discriminate against them but should rather seek help.

“I have a child born with this condition- a young lady of 23 years old. And I realized that in Nigeria, there is not much information about the condition, and you know that any thing that is not well known, people become superstitious about, so I decided to create awareness, by gathering a few parents together, and we started as a parent support group. From there we got involved in helping the children,” she said.

On what causes Down syndrome,  Mordi  explained that the condition is a genetic imbalance.

‘Down syndrome is a genetic disorder- that happens at conception. A child born with Down syndrome (DS) has an extra chromosome. You and I have the regular number of chromosomes in our cells- that is 46; we get 23 a piece from both parents but a child who is to be born with Down syndrome has an extra chromosome which we refer to as an accident of birth. It is not due to anything the mother did, or didn’t do, or the father did or didn’t do .It is spontaneous thing that happens, it is the 47th chromosomes, as against, the forty-six they should  and that extra chromosome is what   predisposes a child to this condition,” she explained.

She decried the practice where families with a DS child would rather want to lock the child up than seek for assistance in administering early intervention. She informed that one of the challenges facing the foundation was the non-challant attitude of the general society.

“Because, as it not a very flamboyant project, a lot of people don’t want to even partner with us, to help these children. The main problem, we experience is the nonchalant attitude of the larger society –to help these children and their family. We have a lot of children we need to support, medically and educationally, but we haven’t got the wherewithal to do that. And, we don’t have much support, and it has been a very big challenge to us,” she said.

Similarly, a Trustee of the Foundation, and Nigeria’s former Ambassador to Ethiopia, Ambassador Segun Olusola,  called on well meaning  Nigerians who have job openings in their establishment not to hesitate to engage, and help children with this condition as they up, in order to give a sense of belonging, that they are wanted, that they have things they can do to help other peopled.

Ruben Abati, also a Trustee of the Foundation, frowned at the attitude of government at all levels toward the welfare of the Nigerian child. The social crusader and the Editorail Board Chairman of the Guardian Newspaper frowned at what he described as the government paying lip service to helping the Nigeria child.

“Governments at all levels pay lip service to doing something for the Nigerian Child. But in reality not enough is done, not real commitment is shown, and what is done is nothing but mere lip service. It is not all about children who have Down syndrome; it is about children generally, in difficult circumstances. Children represent the future of this country. The population of Nigeria is predominately young. And our constitution says, nobody, should be discriminated against, either on the basis of religion or circumstance of birth, faith or for any reason whatsoever. For Government to neglect children in difficult circumstances, amounts to an abuse or a violation of their basic human right,” he said.

However, he gave a pat on the back for Her Excellency, for showing interest the activities of the DS Foundation.

“It gladdens my heart, that, today, we have Government representation, the Lagos State people, the Office of the First Lady of Lagos, and they were well represented. And, the appeal we will be making is that another government should show interest in what the DS Foundation is doing.

What the DS Foundation has been able to achieve is quite impressive. I think, it is a Foundation that deserves the support of government and also, of all a sundry. We run a society, whereby, the privileged do not seem to be public spirited, where the privileged seem to be interested only in conspicuous consumption, and continuous amassing of wealth.

Those chaps in the National Assembly, who are collecting millions of money per quarter. The House of Representative members, they are not even satisfied with 27. 2 million per quarter, which I think, it case of being over paid for doing nothing. They say, they now want about 50 million per quarter. Now, the question you ask is what they do with this money. I would like to see a situation, whereby the privileged in the Nigerian society, does not spend his wealth, either acquired illegally or legitimately, simply on showing of on endless patties, but feel concerned about the plight of other human persons’

The Children entertained the guests and audience with songs and dance. Their performance was so thrilling that Ambassador Segun Olusola has this to say, ‘I thank you for the performance of the kids. When, it comes to the issues, idea, a play, a song, dance, invite me, I will come and be with them.”

World Down Syndrome Day (WDSD) is usually celebrated on 21 March with Down syndrome organizations throughout the world organizing and participating in events to raise public awareness of Down syndrome.

The date which was selected by Down Syndrome International (DSI) to signify the uniqueness of Down syndrome in the triplication (Trisomy) of the 21st chromosome and is used synonymously with Down syndrome.

According to the National President of the Association’, Mrs. Rose Mordi, special activities has been lined up for the day and this will be flagged off by a special thanksgiving ceremony at Redeemed Christian Church of God (Jubilee Christian Centre, 15 William Street, Aguda, Surulere,Lagos) after  which an awareness rally will commence from the Down Syndrome Association of Nigeria Headquarters situated at 43 Adegoke Street, Surulere, Lagos State.

The Awareness rally will proceed to the Lagos State Government House where the wife of the State Governor of Lagos State, Her Excellency, Mrs. Abimbola Fashola will host people with Down Syndrome to an evening of discussions and   to create awareness of the condition in the country.

The association will also use the celebration to inform of the programs it plans to hold tentatively over the next few months in order to create awareness as well as advocate for people with Down Syndrome in Nigeria .

Some of the events include the commissioning of the Down Syndrome Foundation of Nigeria which will take place on the 27th of May 2010; a one day special musical concert that would feature notable artistes in the country billed for the 3rd of July 2010 while the Annual Down Syndrome Awareness Week will commence on the 2nd of October with a Charity Walk; A seminar on the 6th of October while the Awards Dinner evening will take place on the 8th of October 2010.  The Annual Family Funfair which brings families, friends and partners of people with DS is expected to be held on the 9th of October 2010.

Also, there would be introduction of so many others events our PR firm, Meljenstin Public Relations and events Consultants will come up with this year.

The National President wishes to inform our numerous partners and support groups that through their support, the association has been able to relocate from the former resource centre located at 109 Ogunlana Drive , Surulere to 43 Adegoke Street also in the same vicinity, where renovation works is still going on. The association wishes to use this opportunity to appeal to corporate organizations, religious bodies and individuals to project.

The association also wishes to inform the general public especially those with DS children of the introduction of boarding facilities in the educational centre operated by the association and urges families to enlist their children or wards to be adequately taken care of by the specialized staff at the centre.

The association would also like to announce that it would be honoured in the Special Recognition Category of the National Daily Awards as the best Non Governmental Organization for the year 2009 by the National Daily Newspapers.  In a letter dated March 8, 2010, the Managing Director and Editor-In-Chief of the National Daily Newspaper, Mr. Sylvester Egbodaghe noted that the association was being honoured for their “unquantifiable contributions towards those whom ordinarily members of the society would not want to have anything to do with.”“You stuck out your neck and embraced the unembraceable, showing them love and extra ordinary care in the midst of a selfish and careless world. You gave hope by giving off your own humanity,” the letter read.

The Award ceremony   would hold   26th of March, 2010 at the Lagoon Restaurant, Victoria Island, Lagos and is to be chaired by the former Secretary-General of the Commonwealth, Chief Emeka Anyaoku while Prof Jerry Gana, former Minister of Information is expected to give a keynote lecture.

The association wishes to dedicate the award to all its partners.

Visit our website at www.dsanigeria.org for more information or call our Media and Publicity Department on 080-3748-7286: Email: ahaoma@dsanigeria.org

About The Down Syndrome Association of Nigeria

Who are we?

Down syndrome Association of Nigeria is a non-governmental, not-for-profit association of children with Down syndrome as well as their parents, caregivers, and other interested stakeholders.

History

Down syndrome association of Nigeria was formed (founded) on 4th of December, 2001 by a parent of a child with Down syndrome. Societal attitude toward parents of people with Down syndrome is totally negative in the Nigerian society. Society defines them by what they do not have rather than what they have; what they cannot do rather than what they can do; they are relegated, denigrated and stigmatised on the basis of some retrogressive myth and tradition They are abused physically and sexually with impunity and in extreme cases; even their right to life itself is denied them.

It is against this rather harrowing and ugly backdrop that Down Syndrome Association of Nigeria evolved with a vowed commitment to bridge the gap between children/adults with Down syndrome and the rest of the society through a support system that seeks ultimately to integrate them. This commitment is rooted in the firm belief that if given the necessary encouragement and enabling environment to grow like others, people with

Down syndrome can and do actualise their potentials and live a fulfilled life. In a vast country like Nigeria , as well as in the entire West African coast, with a combined population of well over 230 million, we are the known non-governmental organization working to provide leadership in all areas of concern as it relates to persons with Down syndrome. It should be noted that charity/volunteer work in our part of the world could be most challenging and frustrating, especially as there is very insignificant, if any, support (both morally/financially) from the Government and corporate concern

Mission Statement

Vision – Our vision is a world where all young people with Down syndrome are offered the opportunities that they need to achieve their individual potential. Mission – Our mission is to improve the opportunities offered to young people with Down syndrome. We do this by discovering their potential and by identifying how to support their personal development most effectively through scientific research. We then communicate evidence-based information and guidance through publishing, training and consultancy services to families and professionals worldwide. Through scientific research and global communication, we transform the lives of people with Down syndrome everywhere.

Our services

Educational

We give special educational Early Intervention Programme (E.I.P). This is meant to cater for each child’s immediate and unique learning needs and facilitate the child’s developmental milestone. However, before this is done, an assessment test is carried out on the child to diagnose his/her intellectual deficits and medical problems. Our in-house Educational psychologist and medical Doctors in the Down syndrome Association secretariat do this assessment at 109, Ogunlana Drive Surulere, Lagos . As soon as these educational and medical assessments have been done, the child’s medical needs will be ascertained and the modalities for treatment and therapy will be made known to the parents/guardian. Similarly, the result of the educational assessment will reveal the child’s strengths and weakness, and an individualized curriculum Programme is planned for the child; this Programme is unique in the sense that, it is tailored specifically towards the learning needs of each child as all children are not equal, each has his/her own learning needs.

The educational Programme curriculum covers the following areas

1) Literacy Development (Reading & Writing skills)

2) Numeracy skills (Numbers and Calculation)

3) Communication & Language (Speech development)

4) Social Development

5) Vocational skills

6) Perceptive skills

Social Services

Relocation Programme for street boys and girls with Down syndrome

Enlightenment/Interactive services on Down syndrome through media/work shop/seminars

Help line Telephone service and House-to-House emergency respite, Sensitisation and Advocacy/Pressure group to the government, legal services and memoranda to government officials involved with health and educational Programmes at local, state and federal levels.

Regular enlightenment and interactive service on Down syndrome through the media (print and electronic), workshops/seminars.

Through the above mediums Down syndrome Association of Nigeria give information to people about the condition-Down syndrome and the best management strategies. Since Down’s syndrome and learning disabilities is a societal problem as a result of the negative stigma associated with it, we educate and de-stigmatise the society from such negativism.

Sensitisation and advocacy/pressure group to the government including legal services and memoranda to government. The association paid one of such visits to the national assembly (senate). It has also visited the 1st lady of the Lagos State government. Several letters and memoranda are sent on a daily basis to various corporate organization government organs and well meaning personality giving them awareness about this condition Down syndrome and the need why parents who have these children should bring them out for proper care and education.

We also give telephone help-line service and house-to-house emergency respite for people with Down syndrome.

Rehabilitation Services

This department functions under the educational Programme of the Down syndrome Association. The following services are offered:

Training centre and resettlement support for people with Down syndrome

Resource centre which includes Toys and educational library

Mainstreaming and integration school Programme for people with Down syndrome.

Counselling Services

Parents of children/wards with Down syndrome, as well as siblings need a lot of counselling. The Down Syndrome Association of Nigeria has a host of professional counsellors who offer counselling services.

The following lines are for counselling:

234-1-8119718,08032285545 or email counselling@dsanigeria.org.

Referral Services

Down syndrome Association of Nigeria officials and members of the Board of Trustees meet regularly to review the activities of the association.During these meetings, all other committees meet to review Programme of the Association and assess the success and challenges of the various Programmes undertaken by the association during the year.

Like she had feared that all was not well, she asked to see her baby when she regained consciousness. But she was not allowed to see the baby until the fourth day, and when she did, she became hysterical.
“They eventually brought my baby to me on the fourth day. I was having my siesta when they brought her and when I woke up and saw her, I screamed. I knew immediately that she had Down syndrome. I was familiar with the condition because in my previous ante-natal classes abroad, we had been taught about all these abnormalities. I called the attention of the nurse and she tried to reassure me that the baby was okay but I was not convinced.

Later on, they said they were going to carry out tests to determine the type of DS she had. (There are three types of DS – Trisomy 21, Mosaic and Translocation); the hospital also promised to get a physiotherapist to work on her neck which was very weak. Nothing was ever done by the hospital. In order to take care of the baby, I had to take a long leave of absence from work. It was during that period that I got in touch with the Down’s syndrome Association in the UK. I was given some counseling and resources. My daughter is the better for it today because I was able to do something early”.

In order to take care of her daughter, Awele, properly, she had to be constantly in touch with the UK DSA. Later on, she was advised to start a similar organisation in Nigeria to help families because there were lots of enquiries coming from Nigeria. She eventually did that  and the association was formally inaugurated on the 4th of December, 2001. She says the association started with a handful of parent members in her sitting room. The association has about 300 registered members with over 30 children coming in regularly.

She reveals that the establishment of the association became necessary because no such association previously existed in the whole of West Africa. The only one in Africa is in South Africa. She says that parents with children with the condition need to come out to learn how to manage their children’s condition. She also says that our society needs to be educated and awareness programme carried out to eliminate the stigma attached to the condition; such stigmatization is unnecessary and unjustified because these children thrive well on love and constructive affection.

“I recall that when I had my baby, people who saw her made all sorts of uncomplimentary remarks and suggestions. There is this belief that children with D.S. are snakes or demons and should be thrown away into a forest or a stream. I remember someone saying, ‘So you have this kind of baby; they are snakes!’ I just responded that if God in His infinite wisdom deemed it fit to give me a snake for a child, then I will take care of her as all living things were created by God. Such superstition is still rife because just a couple of years ago my sister’s friend nearly succumbed to it. She was asked to go and throw her DS baby in the stream. It was my sister who prevailed on her and enlightened her that her baby was not evil but a precious gift from God.”

Mrs. Mordi however, admits that running the association has been quite challenging; the greatest challenge has been funding. Being a charity, members are not expected to pay for services being rendered but costs are incurred on a daily basis to run the Resource centre.

“We render a number of services and we have various professionals employed to do this effectively. We have the Early Intervention programme (EIP), which is designed to ‘catch them young’, so that the condition is easier to manage as they grow older. Given their condition, they are predisposed to some other ailments. About 60-70% of people with DS have a heart condition that is why many of them die early. Diabetes, thyroid problems, Alzheimer’s and a generally low immune system are conditions associated with people born with DS. Thus they constantly require medical attention and we try to do that at the centre. We have volunteer medical professionals coming in to carry out checks but when there is need for major medical procedures, we find ourselves unable to handle such because of lack of funds.

“Due to their learning disability, we have professionals in that area. We carry out programmes on numeracy, literacy and vocational training. The programme is very much similar to the Montessori system whereby teaching each child is individually tailored towards the ability of the child. At this moment, we are unable to carry out effectively all the programme because we are constrained by space, structures and funds. It costs us approx. =N=600,000 monthly to run the centre. Most of our members are indigent; they cannot afford to pay for the services we render. We need a bus to convey the children because some of them cannot even afford transport money to come to the center.

Our aim is to see that children with DS are adequately taken care of so that they can develop their potentials optimally and be integrated into the society. My vision for the association is to have  proper structures in the six geo-political regions of Nigeria, which will incorporate a medical unit, a school/vocational centre, recreational/residential quarters and other necessary facilities.”

Talking about her own experience, Mrs Mordi says she has coped fairly well because of the knowledge that she has acquired over time about the condition. “My daughter got integrated into the family quite early and was brought up like her other sibling. She is fairly independent as she does everything by herself and is quite assertive. She cooks fairly well and is does shopping independently. She travels without a chaperone.”

Mrs Mordi advises other parents to bring their children out as they are capable of achieving a lot. In the developed countries, many of them are computer wizards and very talented , particularly in the arts. “A number of people with DS work at the UK DSA office and other parts of the developed countries. Thus the society needs to give them a chance to express themselves and fulfill their potentials.”
Mrs. Mordi also says that the association is a membership organization and anyone can join  as it is not restricted to families of people with DS. The association needs a lot of volunteers, supporters, patrons and people who wish to give scholarship to our indigent members.

People born with Down syndrome are predisposed to various medical conditions that require early intervention. In a country like Nigeria where provision of primary health care is almost non-existent, our association (in conjunction with our partners), aims to put up a functional medical unit  this year to take care of minor medical  needs of people with Down syndrome and other learning disabilities. In 2007, our association was able to sponsor two of our children to India for corrective heart surgery. This year, we intend to sponsor about three of the children on our waiting list for similar surgery overseas and also construct a well equipped resource centre with residential facilities.

Everyone can be of help by donating, volunteering or supporting the work of the association in one way or the other. The association has a functional website (www.dsanigeria.org/ email:info@dsanigeria.org). Donations could be made on-line or sent directly to the head office in Lagos.